If you are looking for help with understanding Chronic Fatigue Syndrome generally please look on the navigation bar for the many other CFS articles on this website.
The article below aims specifically to raise understanding of the speech problems that are sometimes experienced by a person with CFS.
Loss of speech is a possible symptom for someone with severe Chronic Fatigue Syndrome.
I found it difficult to speak for over 10 years
when living with the illness, severe Myalgic Encephalomyelitis /CFS.
If I do not have a suitable environment in which to pace out my cognitive activity, it is still difficult for me to talk normally.
Or click here to CHOOSE FROM
A RANGE OF personalizable cards and gifts.
The healing-themed gifts are designed by myself, Katherine, the author of
this website HealingCFSME.com
Proceeds go towards the cost of the website. Thank you. Enjoy!
Please scroll down to read these items in order.
Sign up to receive the free book
Please note that
this CFS article is largely based on my personal experience.
Also, the symptoms of a person with CFS/ME can vary significantly and may not include speech loss.
I have a friend with Lyme Disease who experiences loss of speech and problems with comprehension. It is possible that I too have Lyme (see an article on "CFS - what else could it be?").
It is possible that the communication symptoms I experience are a consequence of Lyme or of environmental illness.
Either way, I know that these cognitive symptoms are experienced by others who, like myself, live with a diagnosis of Chronic Fatigue Syndrome.
When trying to understand the Chronic Fatigue Syndrome symptom of speech loss, it helps to identify which other symptoms may be contributing to the problem. This understanding provides clues about how to help the person with CFS to manage their communication problems.
Speech problems can be related to several potential groups of Chronic Fatigue Syndrome symptoms:
Understanding other problems with loss of speech experienced by someone with Chronic Fatigue Syndrome or Myalgic Encephalomyelitis
The following are not the symptoms which lead to speech loss for me, but may be for others.
A reduced ability to communicate due to speech and comprehension problems is further aggravated if the person has a limited ability to move. This restricts other means of communication, such as writing, typing, sign language or reaching out to touch someone.
I couldn’t write due to muscle fatigue in the fingers and arms. Writing and typing were minimal for me.
As well as losing
the ability to speak normally, people with CFS may also have communication
problems due to finding it hard to comprehend speech from another person.
Communication problems are a symptom also experienced by those who have had a stroke or brain injury.
This can be called aphasia (more severe) or dysphasia.
The advice for aphasia is the closest match for me with the communication difficulties I experience with severe Chronic Fatigue Syndrome. I remember the relief when I read an article in which someone else described the help I needed.
When I told my Doctor that I sometimes lose my voice when speaking on electrical devices, he wrote down that I had dysphonia.
Dysarthria is difficulty speaking caused by brain damage or brain changes later in life.
The illness ME affects the brain and the muscles.
Some of you with difficulty speaking due to illness may relate to the symptoms of those with dysarthria.
If so, you might want to investigate whether a SPECT scan might be helpful.
In the UK (where I live), you will probably need to pay privately for a SPECT scan. I would love to have one done, but they are expensive.
Please know that sometimes in this article I have referred to a symptom
as though it is firmly in the past, when it is a lesser symptom than it
used to be. I am not ashamed of the Chronic Fatigue Syndrome symptoms I experience. But I don't like the idea of people reading them out and affirming that these are the symptoms I have.
I like to leave the door open for them being the symptoms I USED TO HAVE. :-)
In 2008, I experienced significant improvement from very severe CFS.
At that time I regained much of my speech.
ME/CFS is an illness which is very circumstance dependent. I now have better circumstances and the CFS symptoms of speech problems and comprehension problems are thankfully dramatically reduced.
There are still however many times when I can't speak in the way I would like.
What can you do if you are the person who finds it difficult to talk?
Sadly I have no magic solutions, but click through on that link for a CFS article in which I give sympathy and a little advice.
Receive daily inspiration...
by putting your favorite (favourite) healing quote on
a mug, cushion, postcard, coaster, T shirt etc.
You will find my zazzle gift store at
Use one of my designs or start from a blank.
Thank you from me, Katherine, author of HealingCFSME.com
© Katherine T Owen. All articles on this website are copyrighted. I am delighted if you choose to click above to share this page on social media, but please
do not copy, print or otherwise use without my permission. Thank you.
I am not a medical practitioner. The articles on this website are not
to be taken as medical advice. Please consult a medical practitioner as