Quotes About Myalgic Encephalomyelitis

You can share these quotes about Myalgic Encephalomyelitis  and Chronic Fatigue Syndrome on social media.
You will find share buttons to the left of the screen and below.
Please consider doing so. In particular at the following times of year which are set aside for #MEAwareness.

  • ME Awareness month is in May each year.
  • International ME Awareness day is May 12th.
  • Severe ME Awareness Day is on August 8th and is also a day of remembrance for those who have died from Myalgic Encephalomyelitis, including those who have committed suicide as a result of living with the illness.

Relevant twitter tags include #MyalgicE #spoonie #MyalgicEncephalomyelitis #MECFS and #CFSME

Doctor's quotes about Myalgic Encephalomyelitis

I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses, I would rather have H.I.V.
But ME which impacts a million people in the United States alone, has had a small fraction of the research dollars directed towards it.”
Dr. Nancy Klimas, AIDS and MyalgicEncephalomyelitis researcher

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“ME/CFS is not rare and it is highly debilitating,”
Professor Jonas Bergquist, the ME/CFS Collaborative Research Center at Uppsala University, Sweden.

“A key priority is to develop a diagnostic test for ME/CFS to increase the accuracy of diagnosis,”
Dr. Carmen Scheibenbogen, Professor at Universitätsklinik Charité Berlin

The above quotes were issued in Brussels, Belgium 10 June 2020.
More than one 100 scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

With thanks to the ME Association charity for this information on their website.

“The bad news is we don’t know what causes it or how to treat it successfully.
But the good news is that there are now over 4,000 published studies that show underlying biological abnormalities in patients with this illness.”
Dr. Anthony Komaroff, Harvard (quotes
Myalgic Encephalomyelitis)

“Over the last 35 years, there have been over 9,000 scientific publications that compare people with the illness [Myalgic Encephalomyelitis] to healthy people of the same age and sex,
and they find a whole variety of abnormalities.”
Dr. Anthony Komaroff, Professor at Harvard Medical School 

[ME/CFS patients] feel effectively the same every day as an AIDS patient feels two months before death
Professor Loveless, AIDS&ME/CFS Clinic

quote about cfs

“[ME/CFS patients] are more sick and have greater disability than patients with chronic obstructive lung or cardiac disease.”
Dr. William Reeves,
Chief of the ME/CFS research programme at the US Centres for Disease Control (CDC)

Note from Katherine: I shared the above CFS quote on twitter. I was told that Dr William Reeves hasn't always been the most helpful in his attitude towards CFS patients.
This makes me all the more delighted to tweet these words of his which are helpful in validating the severity of the illness :-)

“…for those who have studied the disease for many years, it is apparent that the most serious issue in ME is a kind of brain malfunction that may be caused by an infectious agent, or some other source that is, so far, poorly understood.”
Dr. David Bell, clinician and researcher (quote about Myalgic Encephalomyelitis)

“CFS/ME should be considered a multi system disorder with many organs involved.”
Dr Cariente Pariante, King's College, speaking on Good Evening Wales, December 2018

“M E/CFS is a serious, chronic and systemic disease which frequently and dramatically limits the activities of affected patients.”

Appendix: Report of the Institute of Medicine, Beyond Myalgic Encephalomyelitis /Chronic Fatigue Syndrome: Redefining an Illness, Clinicians Guide, 10 February 2015.  This report was based on the review by the American National Academy of Sciences and Institute of Health of approximately 9000 peer-reviewed studies into ME/CFS.

Other quotes about Myalgic Encephalomyelitis

“These [ME] patients have been ignored for far too long,”
Pascal Arimont, member of The European Parliament (MEP)

"We need to make sure there is good quality education for healthcare professionals.
There is a group of dedication professionals working together (led by the amazing Dr Nina Muirhead) to make sure those that need a greater understanding can access it"

@SonyaChowdhury, (Chief Executive, @actionforme) June 2020 (quote about Myalgic Encephalomyelitis)

As I say please feel free to share these quotes about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome to raise #MEAwareness.

Either way, I hope they have helped to validate your own experience of this chronic illness, in your own life or in the life of a loved one.

Wishing you health both within and beyond illness,


Katherine T Owen

Katherine T Owen runs this website - www.HealingCFSME.com.

She is author of Be Loved, Beloved (Read it in paperback at lulu.com or on kindle)

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Disclaimer: I am not a medical practitioner. The articles on this website are not to be taken as medical advice. Please consult a medical practitioner as necessary.

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