Relationships and chronic progressive illness

by Lynn Miclea
(Los Angeles, CA)

Note from Katherine T Owen:

The letters ALS, referred to in this review, stand for Amyotrophic lateral sclerosis. ALS is also known as "Lou Gehrig's Disease".
ALS is a progressive neurodegenerative disease which affects nerve cells in the brain and the spinal cord.

I invited Lynn to leave a review for her book on

I am yet to read the book but I believe that Lynn addresses the important subject of chronic illness and relationships, not in an academic way, but simply through telling her story of living with someone with ALS in her life.

Chronic illness and relationships is an important subject to many of us and it can help to read of someone else’s experience.

Here is Lynn’s summary of her ALS book:


My mother had ALS - a devastating and progressive illness. My heart and love go out to anyone touched by this or any other chronic illness.

I wrote a book about her experience, about how the progressive illness of ALS affected the family, our relationships, and how we all dealt with the difficulties.

Here is an excerpt from my book:

“Tell her,” I pleaded with my mother. “She has a right to know. She’s your sister and your best friend. Your family cares about you and loves you. Don’t stay hidden and alone with this.” My mother had tears in her eyes, and she looked down at her fingers. “Mom,” I continued, “let her in. Don’t wait until she goes back to New York. Tell her before she leaves so you can cry together and hold each other. She needs to know.”

My mom looked up at me and slowly nodded, and she reached for a pen and paper. She wrote, “I can’t do it. You tell her.”

Walking into the kitchen, I saw that Fran was finishing up and wiping down the counters. “Fran,” I said softly, and she looked up at me. Her face fell as she saw the bleak look in my eyes. “We received a letter from the Mayo Clinic. We know what the diagnosis is.”


This book has received many amazing 5-star reviews. It is a dramatic yet informative and compassionate memoir about a woman’s experience with ALS, as told by her daughter, including multiple diagnoses, symptoms, deterioration, and progression of the disease. It also includes volatile family interactions and is a very personal view of this difficult illness. The story brings you right into their lives and hearts – it is easy to read, and it is hard to put down. In addition, the book offers helpful information and suggestions for coping with and getting assistance for a degenerative disease – a must-read for anyone dealing with any type of progressive illness.

A percentage of the proceeds from the sale of this book is being donated to ALS research for a cure.
Love and Compassion for those touched by ALS or any progressive or chronic illness.

For more information - please visit my website at

Click to order the book from your local Amazon store

tags: relationship sand chronic illness, progressive illness, ALS book, Amyotrophic lateral sclerosis

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